Theo Wargo/Getty. I do not know aorta measurements. Something they suspect is also from birth but never previously picked up. So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. I dont know all of the important details. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. This international evidence-based nomenclature and classification consensus document is intended for universal use by clinicians, imaging specialists . So unfortunately it sounds like i am part of that grey area. I dont doubt there is variability in recovery among athletes who have operation for AVR and aortic replacement. In general, we recommend no weight lifting in patients with BAV if the aortic diameter is greater than 4.0 cm. The material on this site may not be reproduced, distributed, transmitted, cached or otherwise used, except with the prior written permission of Cond Nast. The use of a less invasive transcatheter therapy in this . Ive thought that the next visit to the pediatrician would be a good opportunity to discuss the issue. coarctation of aorta. I then played football my last two years of high school as well as playing hockey and throwing shot put for the track team. It is very frustrating as my doctor would prefer to see me live the rest of my life with restrctions and have the aneurysm stabilized rather than take a chance on surgery and possibly returning to my normal lifestyle. As I restart my resistance (weight training) program what should be my upper limit weights? My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. Willie Moses I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). 2023 Baton Rouge Clinic. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). Bicuspid aortic valves can accumulate calcium deposits more easily than tricuspid aortic valves. This gives a chance for the sternum, which was split during the operation, to heal completely. In some cases, bicuspid aortic valve causes another condition called aortic valve stenosis. I think we would expect less enlargement over time with stopping strenuous exercise. Therefore, in the current study, we aimed to compare procedural and 30-day outcomes after TAVI between type 0 and type 1 BAV . Just a short info for whomever may read, I searched for Tims name and I found this page: I have severe aortic stenosis with no signs or symptoms. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. Baldwin Publishing, Inc. strongly suggests that you use this information in consultation with your doctor or other health professional. Today, echocardiography (ultrasound) for screening or diagnostic purposes for some other heart problem is the most common way that BAV is detected. 1, 2 Much of the data relating to its complications derive from necropsy studies since reliable . This also assumes that there are no other cardiac issues or medical problems to consider. Aortic valve repair is sometimes possible. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. Is strength training that involves only using ones own body weight ok with mild BAV issues, or is all strength training out? Bicuspid aortic valve: A bicuspid aortic valve only has two leaflets, increasing the risk of circulatory problems and heart conditions. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. With aortic root 39mm. mod-severe regurgitation Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. In my early 40s I thought that I was getting out of breath more than I should and eventually began to feel weak or nervous during a game, but only on Sunday. The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. But, three heart valve surgeries! (I'm a 17 year old female)After a heart echocardiogram yesterday we found out I have a bicuspid aortic valve, I originally went in to the cardiologist for extreme fatigue, constant racing heart (avg around 130bpm resting), palpitations, spells where I almost faint, feet swelling and turning purple, etc . (I am on a low dose beta blocker) Ascending aorta is normal and so the rest. This year he was told he couldnt do heavy lifting but all other sports are still ok. My son seems to sprain his ankles or have other injuries often that last longer than others kids, I also played sports and had injuries but they never lasted as long as his do. We dont have a crystal ball, though. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. Im really wondering at what point should I look into flying back to Thailand or Hong Kong to get re-checked. He has been restricted from playing contact sports since hey was 10. Some cardiologists tell me that I can run up to 130 beats per minute ; others say theyd prefer I do power walking because pressure always rises while running. Again, thank you and bless you for taking the time to talk with us here! It has served me well enabling me to live the vigorous, full, complete life you are all so familiar with. Also he told me I can lift weights and do other activities. I have just one thing bothering me, and that is healing of tissue surrounding heart and also chest muscles, nerves and so on. And my wife is screaming at me every time I try to exercise :)). Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient. I have found your article(s) very useful amongst what I see as so much mis-information out there. He is certainly expert in the area of drug therapy to reduce the rate of aortic enlargement. Does the BAV with aortic dilatation and small leakage prevent the blood to flow less efficiently? Youre right, though. As chemist mostly works in a lab not in the field. This award-winning website has helped over 10 million people fight heart valve disease. I have a few questions because I was instructed not to lift more than 10 lbs and that I could resume surfing in a year. Arnold Schwarzenegger opted against a mechanical valve replacement and chose a tissue valve because he felt a mechanical valve might limit his physical activity and capacity to exercise. Required fields are marked *. Replacement? What signs should I look out for? Probably a bicuspid aortic valve but there are many other possibilities Reply My son is devastated, depressed, and wanted to play ball in college. That would include weightlifting. Think to report back to let us know how things go for you, personally. Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. May 10, 2010, 4:50 PM. We go back in 3 months for another echo. I am healthy, strong, and active. that suffer from heart valve disease along with a link to the reference story about heart valve disease and their Twitter handle to tweet on and promote the Valve Disease Day. Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. enlarged LV = 350ml Consensus guidelines suggest restricting activities in athletes with BAV and aortic diameter >4.0 cm. I understand its strenuous activity but if Im for example bench pressing it will get harder for me to put it up at the 8th rep.. Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? Stories of Bicuspid Aortic Valve. Often times, especially for patients with tissue heart valve replacement devices, the valve simply wears out. I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. (Or do I just need to train even harder??). Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. Aortic replacement. My son is desperate to be able to play sports without any restrictions. My 25 year old son was just diagnosed with BAV AR (3+). Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm. A CT scan made the diagnosis. Im paranoid to exercise too much for fear that I will do damage to the valve. The only question I have is in regards to having my children screened. Theres no reason to not be CPR certified.. I would just like to share my experience of having a Aortic Valve replacement. Consensus guidelines suggest that (athlete) patients with BAV and moderate enlargement of the ascending aorta should curtail their strenuous static (eg, weight-lifting) and endurance sporting activities because of the risk of aortic rupture or dissection. I think hes amazed by what I have described for my workouts of 65+ mile rides several times a week. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Its weird because sometimes when Im resting I can feel a little weird fluttering.. I like to practice MTB and running competitively in local races. "Thanks to the team at the Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery," he wrote. Then, Arnold's pulmonary valve was switched to the aortic position. I am mostly a runner, 4 times a week, with 10 21 km races. Keep us posted! Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. Considering the results of my stress test and TOE, do you think it could be my heart and should I seek 2nd opinion. The 72-year-old soap oprea legend started feeling a tightness in her chest in Fall 2018, but waved it off until the end of October, when she had to be rushed to the hospital. I had it replaced in 2014 and am now 16. Because it was just a cardiologist, not a sports cardiologist or physiotherapist. Also I seemed to get quite sweaty the following hours after a hard training session. My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. I am a 55 years old male and have BAV. Im 31 and 1 years ago i found im BAV with modrate AI. I have been doing this for the last 5-6 years now and am hopeful it can continue. I got checked out by my GP who detected a murmur then had all the other heart related tests and was diagnosed with BAV with stenosis and regurgitation. I probably get more inquiries from athletes with bicuspid aortic valve (BAV) than any other single heart problem. I have no proof this may be causing my less than stellar performance or if perhaps I should have more patience. Like you point out, its always wise to be vigilant after surgery for things that might be amiss.and get checked out. He had a mild BAV and was told that he can play with no restriction. The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. When Ive had patients in your situation, Ive usually recommended getting the screening when its CONVENIENT. My son is 15 and has grown about 4-6 inches in the last year. Crossref Medline Google Scholar. This year (her junior year) her Cardio doc is saying that she cant in good conscious clear her for basketball (the sport my daughter LOVES). Interestingly, bicuspid valves are one of the most common forms of heart valve disease. Im a 33 yro female, diagnosed with BAV. Youve got the right idea, though. I would encourage you to have further discussion with your doctor(s) about EXACTLY what forms of exercise are safe. diagnosed wid BAV AND AS WITH AR I get sporatic tingling in my left hand and footand every so often in my left cheek bone. Is that far fetched? "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. Every 6 months it is getting larger. Obviously, mild to moderate would be somewhere in between. http://www.24hourgym.us. I have been given no restriction to date in any physical exercise as my valve is in decent condition. Chris Pratt to Marry into the Kennedy Family. I dont know anything about crossfit but I see his times are average on that page. 2. Because BAV may be an inherited condition, Athletes with BAV, no significant valve stenosis or regurgitation, and an aortic diameterless than 4.0 cm can participate fully in their sport(s), Athletes with BAV and enlargement of the aorta to between 4.0 and 4.5 cm can participate safely in only low and moderate intensity sports (this would. Adam has been featured by the American Heart Association and Medical News Today. I knew none of this until a year ago. Hey would like to continue to be active but is worried about which procedure would be best for him. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. Your sons cardiologist would seem to be in the best position to offer specific advice. According to reports (and my new cardiologist), this congenital variation . While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. Thank you very much for the answer! Bicuspid aortic valve is a common congenital anomaly but does not cause functional problems unless aortic valve stenosis, aortic valve regurgitation, aortic root dilatation, or dissection or infective endocarditis occurs. Could you please give me an insight into what else could be causing these chronic episodes of shortness of breathe, lightheadedness and off-on chest pains. Is there anything we can do? They dont know they have it [It] leaks blood. My son will be 16 next month. Almost half of BAV subjects develop different degrees of valvular dysfunction during their lifetime. The GOPs failure to get the 118th Congress going shows how the performative nature of todays Trumpified party is making it incapable of governing. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. Im 32 years old and back in 09 I discovered I have a BAV. I want to continue weightlifting .. what is your opinion about this ? which seems to suggest that he has returned successfully to the sport. I have only trivial aortic regurgitation. She is afraid, I can understand that. We have got two completely different opinions from our cardiologists: While I do not work out regularly, my job as a construction worker is somewhat strenuous. I was diagnosed age 4 and am now 35. To me, cardiologists are not sports people and air on being absolutely over cautious. We are trying to work out a way for her to continue to play. I see my cardiologist the end of May. Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. Hey is a frustrated guy. If the valve is smaller than needed, there can be a limit to the ability of the heart to do extra workand that can show up as less speed. Key points about bicuspid aortic valve. 140 miles at race pace. For those with moderate aortic stenosis, the guidelines suggest restricting activities. Is there any research on this? She says now it is stable and I dont have to see her for 2 years. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. We are wondering is there a science to knowing when he should have the surgery? PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three.If untreated, it can lead to blocked blood . The aortic valve lies between the heart and the aorta, the main artery . But Ill check it as soon as possible. Hamilton mother of twins, Cherie was diagnosed with bicuspid aortic valve disease (BAVD), a disease where the valve has only two leaflets. A HR limit of 120 will be tough, I would guess. An early indicator of BAV is a heart murmur, which is an abnormal sound caused by the turbulent . When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. No enlargement of aorta or any other problems. My daughter has played two years of varsity basketball already. My resting pulse is 55 and BP 115/82. BAV only has mild regurgitation. Im a 30 year old male who is currently living in Asia with family. I am concerned about removing the coronary arteries and re attaching them again etc. Your responses mean a lot to myself and no doubt others on this forum. All severe aortic stenosis patients who are experiencing symptoms should ask for a TAVR evaluation. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. I am now 60. I was diagnosed with BAV, with regurgitation, no stenosis, at age 63. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? I am 18 years old . Just double checking. My cardiologist (London Heart Hospital) gave me green light to moderate sport activities (no marathon and weight lifting). Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). Looking through the reader comments here at the blog and reflecting on the athlete inquiries Ive received, I thought Id cover some of the major issues. Dear Dr. Creswell, My questions are: In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. It will probably take a visit with a surgeon (who has all of the pertinent details) to outline the possibilities for you. I will do whatever I can to make sure my mom is comfortable and has whatever she needs, she said. Aside from the problems with aortic valve stenosis or regurgitation or with enlargement of the aorta, individuals with BAV can also suddenly develop the problem of aortic dissection. Post 2 years and Ive yet to get back to my high level of racing fitness and wanted to see what should be expected. I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP). Can you advise and or recommend a specialist? I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. Got rheumatic heart disease in my childhood and now have fibrosis of the aortic valve with regurgitation (1-2), mitral valve prolapse with regurgitation (1-2) and tricuspid valve regurgitation (1). He sees his cardiologist every year. Im not familiar with employment eligibility issues with BAV, even in this country. I have an OnX mechanical valve. In April of this year (2016), I discovered I had a BAV in the worst manner possible. I cant wait to be back, completely rested with my heart recharged, my passion for the work ahead purposeful and my joy at lifes pleasures high," the statement continued. Thanks! All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. There, Lucci learned that she had a 90 percent blockage in the main artery of her heart and a 70 percent blockage in another, and needed emergency surgery. I asked her about surgery. There can be issues with aches and pains even months after operation that still relate to healing. Even if its one person I help. Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. Also hypertension in both arms. Website designed by Gatorworks. Looking forward to hearing your thoughts. From your standpoint (and your sons), it will be important to have that dialog to sort out whats safe. I would not want yo distinguish between the various forms of static exercise that you mention. I feel like my HR takes longer to warm up and recovery after races is longer. Onside rations would be needed for hose with Marfans syndrome or other diseases of the aorta. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). Please help me . This has caused a Thoracic aortic aneurysm that is 4.3 cm. The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. EKG and echocardiogram were done showing BAVD. Yes, there are certainly patients with BAV who never need operation. My Echo Stress Test is normal but when I finish obviously the pressure is higher (190-80 at the end) . I am also in grey zone waiting for surgery. They said that everything is working fine except that I have a slightly enlarged aorta and the very beginnings of an aortic aneurism which most likely occurred PRIOR to surgery as a result of the pressure over the years and my old BAV. No stenosis or regurgitation, aorta 27 mm at the time. After the first month, patients are generally allowed to return gradually to all of their previous activities. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). 24 HOUR GYM For me, its about gender equality. How severe are the problems? 4.2cm dilated aortic root This makes the aortic valve a tricuspid valve. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. Barb. Okay to wait? For some reason I did not receive a notification of your reply, so apologies that I havent thanked you before. Doc says no problem, but that seems to be contrary to what I see here. But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. Do you have any info or recommendations about this? Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. Also, again, no stenosis or regurgitation, 35 mm ascending aorta. Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. I am followed every 2 years. CT or MRI may be more accurate. However, I absolutely love being competitive at running, and dont want to jeopardize that either. He left it pretty vague. Doing nothing wont be great for my heart and wont extend my life neither probably.. Thank you for the blog that addresses the athletes point of view, and feelings. Thanks for sharing your sons story with BAV. Thanks so much for all this info! The recovery from heart surgery can be hard to predict for any given patient, but we know that young otherwise healthy patients tend to do well. Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. This almost seems like an off the shelf answer and Id therefore be really keen to find out your thoughts? Weight-lifting is only one example, but others would include golf, bowling, shooting, etc. Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. I was to the understanding that the aneurysms caused in bav patients was due to the problematic bav valve causing uneven blood flow to cause uneven pressure on the aorta. Soccer is his only sport and his passion- he plays on his high school team and a travel team. The false lumen extending into the abdominal aorta was left since the point of origin in the ascending aorta was repaired. My son will seek a repair when his conditions deteriorate. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. I currently run 40 -50km a week and do two 2 hour intensive yoga sessions a week. Maybe thats not surprising, given that Im a heart surgeon and that many individuals with BAV need operation at some point. Heart failure, where the heart weakens from working too hard to pump blood. Is the biggest risk (from numbness) a over-calcified valve which would cause lack of blood flow? Diagnosed last year while looking at something else. Your advice is always invaluable and most appreciated. When first diagnosed with BAV I just nodded and smiled it was only the following day that reality hit home and I thought of all of the questions that I would have liked to have asked the cardiologist! He was very talented at football. Im hoping you can help with some guidance. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. Want to get a head start on your Oscar predictions? Before that, I had never seen a cardiologist ever. Ed Helms - Actor - Undisclosed CHD. In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo.
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